DS Biome - Down Syndrome Gut Microbiome Sibling Study

​

​

​​

​

​

​

​

​

 

Ethically approved by University College Cork, Ireland and funded by the Lejeune Foundation, the study titled

DS Biome: Down Syndrome Gut Microbiome Sibling Study investigates the gut microbiome in relation to digestive sensitivities, bowel disorders and age-related conditions such as dementia in individuals with Down syndrome.

Read on to learn more about the study and what participation involves.

​

​

What is the study about?

 

Very little is known about the gut microbiome of people with Down syndrome.
Areas of Down syndrome that may be particularly affected by the microbiome include:

​

• digestive sensitivity and bowel disorders;

• ageing ahead of time and ageing-associated disorders, such as dementia.

​

This study will explore the microbiome of Down Syndrome in relation to these conditions.

​

 

Can I take part in this study?

​

Answer yes to any of the questions below and you can take part;

​

• Do you have Down Syndrome?

• Do you have a brother or sister with Down Syndrome?

• Do you have a child with Down Syndrome?

​​

All ages and any gender can enrol

​

 

What would I have to do?

​

This is an online study so everything can be done from your home.

• Answer some questions on diet and health on a computer

• Give us a poo sample using a sample collection kit that we mail to your home

​​

​​​

 

Our Study is Now Closed to Further Enrolment

​

Thank you to everyone from the Down Syndrome community who participated in our online study. Your involvement means so much to us.

​

A summary of the findings will be shared here as soon as it’s available. Follow us on X (@DS_biome) to be notified when it’s live.

​

​